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Samantha and Katie from Team Gene talk all things London Marathon!
Hello, we’re Samantha and Katie, two running novices set to take part in the 2017 Virgin Money London Marathon on behalf of Genetic Disorders UK! The first question we hear you ask is how on earth do...
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National Sibling Day
In recognition of National Sibling Day, 10 year old Chloe Horrobin shares her story of life living with a sibling who has a life-altering genetic condition. The story is entirely in her own words,...
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Mother’s Day by Tracy Lynch
Little did I know that Mother’s Day, 18th March 2007, would be the start of my life, and that of my family, changing completely! My daughter Jennifer, then aged 5, had an eye check with the local...
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Rare Disease Day
Today marks Rare Disease Day, a global event to raise awareness of rare diseases and their impact amongst members of the public, healthcare professionals, researchers and policy makers. Approximately...
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Jeans for Genes Day is back!
The original and best dress down day is back and this year will take place on Friday 22nd September. By donning your denim you will help to transform the lives of over 500,000 children who are living...
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The real difference your money makes: introducing Imogen
Superstar Imogen is helping to raise awareness of the importance of Jeans for Genes Day It was at Stacey’s 20 week scan when doctors said her unborn child could be born with a twisted spine. Stacey was...
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How your money helps: meet Paige
Paige is helping to raise awareness of Jeans for Genes Day by sharing her story Dravet Syndrome is a very rare genetic disorder which occurs in 1:20,000 to 1:40,000 births. It is the result of a fault...
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Jeans for Genes Day 2016
This year we celebrated twenty one years of Jeans for Genes Day on Friday 23rd September! Thousands of our incredible supporters donned their denim and supported children who are living with a genetic...
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Made in Chelsea star Louise Thompson tells us why she supports Jeans for...
During a photo shoot with the gorgeous Made in Chelsea star Louise Thompson, we managed to sit down and find out why Louise will be donning her denim this Friday! Why do you support Jeans for Genes Day...
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Jeans for Genes chat to Girls Aloud superstar Nicola Roberts!
This year Girls Aloud singing sensation and fashion designer Nicola Roberts is supporting the Jeans for Genes campaign and donning her denim to help transform the lives of children living with genetic...
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The Ultimate Guide to Overdoing it in Denim on Friday 23rd September!
There isn’t long now until this year’s Jeans for Genes Day and with your help we can make this year bigger and better than ever before! As well as wearing your jeans and donating your cash, why not...
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Meet Josh, 7 who is helping to raise awareness of Jeans for Genes Day 2016!
Josh and his Mum Wendy Josh has Norrie disease, a genetic condition which causes boys to be born totally blind or become blind in both eyes at a young age. Up to half of children who are born with...
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Jeans for Genes Day 2016 Ltd Ed Fashion T-shirt Launch in Glasgow!
Last week was a very exciting week for Jeans for Genes Day, we launched our 2016 limited edition fashion t-shirt at the Gap Store on Buchanan Street in Glasgow. This year’s t-shirt has been designed by...
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Introducing Katherine Garbutt, this year’s Jeans for Genes Day fashion...
This year, Jeans for Genes are delighted to have teamed up with the prestigious Glasgow School of Art to design our 2016 limited edition fashion t-shirt! Students from GSA were challenged to design a...
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Father’s Day: Becoming A Rare Dad!
In 2008 I became a father. But only after little Oliver stubbornly refused to arrive on-time. He was plucked out via emergency caesarean section after a long labour. He was born for all intense...
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Why Your School Should Take Part in Jeans for Genes Day!
Friday 23rd September marks the 21st Jeans for Genes Day and this year we hope Jeans for Genes Day will be bigger and better than ever before! Pupils from Chelsea Academy enjoying Jeans for Genes Day!...
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The Donna Ida Denim Drive!
Denim Queen and Jeans for Genes Ambassador Donna Ida Thornton is launching The Donna Ida Denim Drive this month in support of Jeans for Genes Day! Donna Ida aka Denim Queen! Need a new pair of jeans...
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Jogging for Genes!
This year Jeans for Genes Head of Marketing Operations Doron Kristal is taking part in his 18th marathon. Here he shares an insight into his training journey and the joys of balancing training with...
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To all the ‘rare’ Mums out there on Mother’s Day
You never imagined that motherhood was going to be this way. You never knew that being a mother was somehow not going to feel like it was enough. No one told you how the diagnosis of your child was...
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Blog Takeover: Rare Disease Day
In her latest blog post, our Genetic Counsellor Emily discusses Rare Disease Day and how your support is helping to change the lives of children and families affected by rare genetic disorders. “As...
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